What about disclosure?

The topic of disclosure comes up almost from the moment of diagnosis.  Actually, I think it may even come across one’s mind even before seeking a diagnosis.  It may be part of the fear of not knowing what to do with the information that will be gained once a diagnosis is made.  What will I tell my family?  What about friends?  What about school or an employer? 

These questions may be the same regardless of whether you are a parent or an adult.  There are a variety of ways to disclose and it will vary depending on age and circumstances but I always favor the side of having more information than not enough.  I think for one to self advocate they need to be self aware.  Self awareness comes from knowing yourself and a diagnosis is part of who you are.  As I have mentioned before, a diagnosis doesn't have to define you but it is a part of you.  Once you have the knowledge then you can decide what steps you need to take to take care of yourself and help others understand your needs.  

Supportive family, friends, teachers and co-workers will appreciate you trusting them and will be more open to understanding how to support you.  This care of self will also help to find future friends, partners and employers that are supportive and allow for one to be themselves and not have to hide or mask who they are. Something I think that we all need.  A safe place to be ourselves.